Hemispheric pattern
Age
Age at the time of medical therapy initiation
Sex
Side involved clinically
Systemic Symptoms at Onset
Antecedent brain insult
Pre-existing developement delay
Neuroregression
Seizure types
New or progressive focal deficit
Peak seizure frequency
Age at 1st seizure
Months to deficit
Prodrome (time taken from onset to daily / recurrent seizures (months))
Onset to peak seizure frequency
Focal Seizures
Generalised Seizures
Epilepsia partialis continua
Seizure Polymorphism Present ?
Number of Anti-Epileptic Drugs at last follow up
Stage at Presentation
Clinical Stage at the time of surgery
Radiological Stage at the time of medical therapy
Radiological stage at the time of surgery
Respnse to 1st Rx
Response to medical immune threapy
Engel Class at final review
Engel Class I at final review
Engel Class in Medical Patients at 6 months
Engel Class in Medical Patients at 6 months vs others
Engel Class 1 In Medical Patients at 6 months vs others
Engel Class in Surgical Patients at 6 months
Engel Class in Surgical Patients at 6 months vs Others
Engel Class 1 in Surgical Patients at 6 months
Cerebellar Diaschisis
Atrophy trend
Total no of CT
Post-operative deficit worsening
Categorical duration
Early focal site
Total no of MRI
Offered Surgery
Onset Symptom
OnsetRe
Signal trend
Type of surgery
SURG YN
MedicalRxYN
Other immunosuppressants ?
Rituximab used as Steroid-sparing agent
Mycophenolate used as Steroid-sparing agent
Steroid Course received ?
Steroids Yes or No
IVIG Treatment received ?
1st or 2nd half
STAGING OF CORTICAL PATHOLOGY IN RASMUSSEN SYNDROME
CEREBRAL CORTEX
NEURONAL LOSS
ASTROGLIOSIS
MICROGLIAL ACTIVATION
T-CELL INFILTRATION
Date of first abnormal scan
Last normal scan after symptom onset
1st B1 stage scan
Last B1 stage scan
1st B2 stage scan
Last B2 stage scan
1st B3 stage scan
Last B3 stage scan
1st B4 stage scan
Last B4 stage scan
Onset to B1
Onset to B2
Onset to B3
Onset to B4
Onset to B1 entry
B0 to B2 entry
B1 Entry to Exit
B1 exit to B3 entry
B2 Entry to Exit
B2 Exit to B4 entry
B3 Entry to Exit
B4 Entry to Exit
Frontal Lobe Score
Occipital Lobe Score
Parietal Lobe Score
Temporal Lobe Score
Caudate atrophy
Putamen atrophy
Thalamus involvement
Hippocampus involvement
Brainstem involvement
Time from onset to atrophy
Swelling pattern - fully evolved
T2FLAIR signal pattern - fully evolved
Occip Sparing
CSF findings
EEG_Predicted _lateralisation
Contra-leteral Hemisphere Inter-ictal Epileptiform Abnormality
Contra-lateral hemisphere background rythm
Ipsialteral Hemisphere Inter-ictal Epileptiform Abnormality
Ipsilateral Hemisphere Rythm
EEG Supression
Date of Symptom Onset
Date of worsening (stage 2)
Date of Surgery
1st CMC visit
Last CMC visit
Atrophy onset
Diffusion restriction (early)
Gadolinium Enhancement
Date of Scan for lobar comparisons
Onset to 1st scan
Total follow up
First visit to start of medical therapy (months)
First visit to date of surgery
Post-medical Rx follow up
Disease onset to start of medical therapy (months)
Disease onset to start of surgical therapy (months)
Post-surgical Rx follow up
Time to first treatment- medical or surgical
Disease onset to surgery
Hospital Arrival to Surgery
Added Follow Up days Post 31.12.17
Time from Onset to Presentation