Evaluating a nurse-led narrative interview intervention with cancer patients with a first diagnosis: a feasibility study.
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The data included in this repository refer to a research project entitled: "Evaluation of a nurse-led narrative interview intervention with newly diagnosed cancer patients: a feasibility study".This study aimed to evaluate the feasibility and usefulness of nurse-led NI in the management of newly diagnosed cancer patients. A mixed-method pilot study was conducted with pre- and post-intervention assessment, qualitative longitudinal data analysis and data triangulation. The Mini-Mental Adjustment to Cancer assessed adjustment to the disease, while the Psychological Distress Inventory investigated psychological distress. The qualitative analysis of the narrative interviews assessed the usefulness of the intervention. We entered a data set comprising two folders, one with quantitative data on the questionnaires completed in the study (and described earlier) and a second folder with the thematic analysis of the interviews conducted at T1 and T2. The analysis involved defining units of meaning, then sub-themes and themes, and we present an overall dataset of analysis of all interviews at T1 and one of all interviews at T2. The final quantitative and qualitative data are included in the manuscript. For the quantitative data of the questionnaires, non-parametric tests were performed (as described in detail in the article) due to the small sample size. For the qualitative data, the two thematic analysis tables at T1 and T2 were compared and the research team highlighted the main changes in significance when moving from T1 to T2. The results of this transition are presented in the results of the manuscript
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Study Design A pilot mixed methods study was designed, featuring a before-and-after intervention evaluation, qualitative longitudinal analysis of data [33,34], and concurrent data triangulation [35], following the protocol published by Artioli et al. [36]. The intervention consists of two Narrative Interviews (NI 1 and NI 2), conducted 30 days after the cancer diagnosis and 15 days following the first interview, respectively. The study focused on patients from the Oncology Service at a hospital in Northern Italy. A convenience sampling strategy was employed, including patients newly diagnosed with cancer. To respect the participants' emotional state, the research team contacted patients approximately one month after communicating the diagnosis. Assessment and Intervention Procedures Evaluations were both quantitative and qualitative. 2.6.1 Quantitative evaluation is administered immediately after enrollment (T0), 30 days after diagnosis (T1), and following each interview (T2). Assessments utilized Italian-validated tools, including the Psychological Distress Inventory (PDI) [39] for psychological distress and the Mini-Mental Adjustment to Cancer (Mini-MAC) [40,41] scale for adaptation to illness. These scales were administered at T0, T1, and T2, and the evaluation process was detailed in a Gantt chart (Figure 1). 2.6.2 In qualitative evaluation employing the NI method, the first session occurred right after the T0 questionnaire administration and the second 15 days after the post-initial interview. Interviews explored three main themes: * Patient's perception of cancer diagnosis communication * Patient's adaptation to the newly diagnosed condition * The impact of cancer on personal life history and interpersonal relationships