Social Characteristics and Outcomes of Pregnant Patients and Infants Diagnosed with Surgically Intervenable Congenital Conditions

Published: 4 September 2024| Version 1 | DOI: 10.17632/hsfy5jt7g7.1
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Description

This dataset includes information from 295 pregnant person and infant dyads treated at a single academic medical institution in the Pacific Northwest between January 1, 2014 and December 31, 2022 who were diagnosed with one or more of the following congenital anomalies: congenital diaphragmatic hernia, tracheoesophageal fistula, intestinal atresia, omphalocele, gastroschisis, myelomeningocele, lower urinary tract obstruction, and sacrococcygeal teratoma. Information gathered includes pregnant patient demographics and characteristics, prenatal care services, pregnancy complications, delivery characteristics, and infant perinatal and surgical outcomes. This data has been de identified to maintain PHI of the subjects in the study. This project was approved by the IRB at OHSU (ID# 00025126). Data can be interpreted using the Data Dictionary, attached. Funding: This project was supported by the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health, through Grant Award Number UL1TR002369. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH.

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Institutions

Oregon Health & Science University

Categories

Congenital Anomaly, Pediatric Surgery, Equity, Determinants of Health

Funding

National Center for Advancing Translational Sciences (NCATS), National Institutes of Health

UL1TR002369

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