Gorlin syndrome: Evaluating the burden of disease in 50 patients seen in a private dermatology group Mendeley Supplements 1 and 2

Published: 20 October 2021| Version 1 | DOI: 10.17632/m6893sbt4b.1


Supplement 1 is an explanation of burden score calculation. Supplement 2 is the number of patients and private group dermatology practice office locations by region.


Steps to reproduce

For supplement 1: Each patient was assigned a disease burden score, a metric designed to numerically quantify the overall disease burden experienced by each individual patient. More information is included in the supplement. For supplement 2: The data was gathered by obtaining the number of Advanced Dermatology and Cosmetic Surgery Clinics around the nation separated by region, number of patients out of the 50 Gorlin Syndrome patients, number of group practice offices, and the number of Gorlin Syndrome patients per group practice office.


ADCS Clinics LLC, Ameriderm Research, University of Central Florida


Congenital Disorder, Basal Cell Carcinoma, Disease Burden