Approach to Mycosis Fungoides in children (ARMFUL study): consensus-based recommendations.

Description

This project aims to derive consensus recommendations for pediatric Mycosis Fungoides (MF) management. Experts from pediatric dermatology, general dermatology, dermato-pathology, and pediatric hematology-oncology (N=37) contributed to consensus recommendations. The process involved three eDelphi rounds, concluding with a final consensus meeting using a modified Nominal Group Technique for unresolved items. The consensus expanded clinical severity measures beyond TNMB staging to include pruritus, functional or esthetic impairment, quality of life impact, psychological aspects, and parental anxiety. Ten consensus-based treatment recommendations for early and advanced stages were established. This dataset includes the following tables: Table 2. Domain items that reached consensus in diagnosis and evaluation of children with MF; Table 3. Domain items that gained dissensus or inconclusive results (bold) for inclusion in diagnosis and evaluation of children with MF; Table 4. Domain items that reached consensus on management and outcomes of children with MF.

Steps to reproduce

The expert consensus was pursued using 3 separate rounds of a modified electronic Delphi (eDelphi) exercise followed by a modified Nominal Group Technique (NGT) employed during final consensus meeting, led by a Focused Expert Committee of pediatric dermatologists and an expert in methodology.

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