Table I for Multidisciplinary Care of Epidermolysis Bullosa during the COVID-19 Pandemic – Consensus: Recommendations by an International Panel of Experts

Published: 30-07-2020| Version 2 | DOI: 10.17632/zmpncb6zpr.2
Contributors:
Dedee Murrell,
Johannes Bauer,
Martin Laimer,
Johannes Kern,
Susan Robertson,
John Su,
Linda Martin,
Diana Purvis,
Alain Hovnanian,
Christine Bodemer,
Cristina Has,
Slobodna Murat-Susic,
Leena Bruckner-Tuderman,
Jemima Mellerio,
milos Nikolic,
Cezary Kowaleski,
Asli Bilgic,
Mette Sommerlund,
Eli Sprecher,
Amy Paller,
Amir Barzegar,
Arti Nanda,
Mae Ramirez-Quizon,
Mark JA Koh,
Ken Natsuga,
Sang Eun Lee,
Francis Palisson,
Anna Bruckner,
Anne W Lucky,
Phuong Khuu,
Peter Marinkovich,
Jean Y Tang,
Heather Rishel,
Jouni Uitto,
Karen Wiss,
Lawrence Eichenfield,
Elena Pope,
Irene Lara-Corrales,
Joyce Teng,
Julio Salas,
Chao-Kai Hsu,
Tor Wo Chiu,
David T Woodley

Description

A questionnaire was drafted by DM into a table of suggested modifications to the management of EB during the COVID-19 pandemic. Fifty seven well-known experts on EB were selected based on membership of the international Clin-et group and/or clinical expertise in EB demonstrated at International EB Congress participation. Responses and reasons for each response were requested individually to the lead author based on an ideal scenario, rather than what actually may happen in some centers with financial constraints. A priori, consensus was considered to be the agreement of more than 70% of respondents with the suggestion. Questionnaires were returned by 44 of the 57 EB experts, representing several areas of clinical expertise in EB (dermatology, pediatrics, internal medicine and surgery) from 5 continents. After addition and revision of some items and 3 cycles of revoting, consensus was achieved for all items, which are summarized in this Table. The full details are published in the JAAD -doi: 10.1016/j.jaad.2020.06.1023

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