Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study”

Name: Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study”
Creator: Benny Tran
Published: 2025-06-25T00:12:53.137Z
Keywords: Photodermatosis, Porphyria, Diagnostic Delay

Tran, Benny; Raef, Haya; Rebeiz, Lina; Wheeden, Kristen; Elmariah, Sarina; Anderson, Karl; Leaf, Rebecca; Naik, Hetanshi; Dickey, Amy

doi:10.17632/8crp6j38ns.1

Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study”

Published: 25 June 2025| Version 1 | DOI: 10.17632/8crp6j38ns.1

Contributors:

,

, Kristen Wheeden, Sarina Elmariah,

,

Description

Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study,” published in the Journal of the American Academy International.

Files

Institutions

Massachusetts General Hospital
MA, Boston

Funders

National Institute of Arthritis and Musculoskeletal and Skin Diseases
Maryland, United States
Grant ID: 1K23AR079586
National Institute of Diabetes and Digestive and Kidney Diseases
Maryland, United States
Grant ID: U54DK083909

Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study”

Description

Files

Institutions

Categories

Funders

Licence