Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study”

Name: Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study”
Creator: Benny Tran
Published: 2025-06-25T00:12:53.137Z
Keywords: Photodermatosis, Porphyria, Diagnostic Delay

Tran, Benny; Raef, Haya; Rebeiz, Lina; Wheeden, Kristen; Elmariah, Sarina; Anderson, Karl; Leaf, Rebecca; Naik, Hetanshi; Dickey, Amy

doi:10.17632/8crp6j38ns.1

Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study”

Published: 25 June 2025| Version 1 | DOI: 10.17632/8crp6j38ns.1

Contributors:

Benny Tran, Haya Raef, Lina Rebeiz, Kristen Wheeden, Sarina Elmariah, Karl Anderson, Rebecca Leaf, Hetanshi Naik, Amy Dickey

Description

Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study,” published in the Journal of the American Academy International.

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Institutions

Massachusetts General Hospital

Funders

National Institute of Arthritis and Musculoskeletal and Skin Diseases
United States
Grant ID: 1K23AR079586
National Institute of Diabetes and Digestive and Kidney Diseases
United States
Grant ID: U54DK083909

Supplementary materials for “Impact of delay in diagnosis in patients with erythropoietic protoporphyria, a cross-sectional survey study”

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